Thursday, May 7, 2009

Something short of a miracle.....

So, the info from the cardiologist today was that the PDA finally closed. Grace's nasal canula was removed yesterday, but replaced last night when her saturation levels dropped over the evening. With the extra oxygen, she has been able to keep her oxygen saturation levels between 75-85, where they shouldbe for a baby with her condition. The decision that was made at last nights grand rounds was to send her home with oxygen and monitors and not do the shunt surgery at this time. They are not certai if she will need any other surgeries at this time, and will be followed by a cardiologist on a weekly basis.

This was fantastic yet, frightening news. I am so happy for her not to need any further surgey at this time, but I am hoping she does well with her oxygen and monitors when she comes home. This is quite a bit of responsibility.

There are still many things that will be done from the hospital to prepare for her trip home. We have to have the equipment delivered to the house and be trained how everything works as well. They will also be doing some tests with her at the hospital to make sure that she is truely ready to come home.

The cardiologist also said that she does not have Ebstein's anomoly. This was also such good news. So, we will just wait and see what the right ventricle of her heart wants to do over the next couple of months to see if anyting further needs to be done.

I was praying so much for this news, but I never thought that this would be true!!

14 comments:

  1. Alexis -
    I know you can handle any responsibilities that come with Grace. It may seem challenging at first but you will get the hang of it quickly.I am so glad for this news too. I have been checking for updates (thank you for them) and this is just incredible news. You must celebrate! Eat cake! Call your friends and loved ones! Give that baby a big kiss!

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  2. Ahhh this is amazing!! Yay Grace!

    Kristin

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  3. HURRAY!! This is the best news ever. You and Keith are more than ready to handle anything that comes along. Baby Grace will thrive at home with all the attention she'll get from Gavin and Marley and Summit.

    XOXO
    Judie

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  4. Great news Alexis!! I'm sure it's scary to think about taking care of her at home but they won't let her leave until she's ready. So happy for you all!

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  5. She truly is Amazing Grace!! I'm so happy for you and your family!!

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  6. I am so happy that she is coming home- feel free to call us at anytime if you need something. Grace has certainly turned out to be a strong little lady, just like her mommy!!!

    XOXO,
    Christine & Lina

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  7. We are so glad to hear Grace is coming home! I know you & Keith will handle everything beautifully---you're so loving of little Grace & have sailed this sea so wonderfully already with her! We'll keep on praying!!
    love,
    Laura & Gary, Nick & Ben XXXX

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  8. Yes! Wonderful news. You all continue to be in our thoughts. Another day, another step.

    Take care.
    Rick and Lori

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  9. Absolutely amazing! So happy to hear this news Alexis! Can't wait for Grace to come home! You all will be fine! Ask for help though when you need it. Don't be afraid to ask us. We are all here for you! She is an amazing litte girl and you are a wonderful mom!

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  10. This is the most wonderful news! I am so happy for all of you! You will be wonderful at home with Grace...no doubt in my mind! Let me know if there is anything I can do to help you guys out! Love to all of you and a HUGE HUG to Grace!!! We can't wait to meet her!
    Love, Kristin, Carter, Brooke and Gavin

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  11. This is wonderful news. I know you will be able to handle the responsibility. I am so happy your family will be united and Gavin will see his baby sister.

    Love,
    Aunt Roberta

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  12. Alexis and family,
    I am so happy to hear the news about Grace. It sounds like she is doing amazing! What a relief. It will be quite a juggling act at home, I am sure, so please don't hesitate to ask for help. I am happy to watch Gavin ANYTIME! You are in my prayers.
    Nikki Yates

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