Wednesday, April 29, 2009

Wed. April 29th

We have no oxygen, no tubes, no meds., and are eating by mouth!! What a huge change in just one week. The PDA is not closed yet, but they feel it is closed enough to know that the right ventricle is working enough. This information is from the nurse. The cardiologist appears to be an elusive beast who only rounds late in the afternoon at no set time---we never get to actually witness these rounds--we just hear about them from the nurses. I am actually going to call the cardiologist tomorrow in hopes to hear some optomistic information straight from their mouths versus the nurses. I love the nurses in the NICU, they really know what is going on.

There is a rumor that Grace might be coming home as early as this weekend. This is both exciting and scarey at the same time. I want nothing but to be able to cuddle her all day long....but I know she still has Ebstein's anomoly and I would like to hear from the cardiologist what the plan is for that defect. I know before she was born they said that the Ebstein's may not be corrected until later in life...or if it is really mild....maybe never. This is what I want to know.

Well everyday is better and better news!! Thank you all for your prayers and your support. You all have been so helpful in keeping me together through out this pregnancy and with all that Grace has had to endure. All of your prayers have truely made a difference.

6 comments:

  1. She is the sweetest and strongest little girl ever. We are so happy to hear she is coming along so well. Our prayers continue to be with all of you. Can't wait to see her. Her Great Aunt Carole wants to style her hair and play with makeup with her :-)

    Love GG Liverton and GA Carole

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  2. WooHoo! That is exciting news!

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  3. This is truly wonderful news, and calls for big smiles all around!! Give Baby Grace a kiss for me.

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  4. YAHOOOO!!!!

    Baby Grace is doing AMAZING! So glad to hear and see this great pictures and news of her. :) I can't believe she might be coming home already. That is fantastic to hear! Prayer is an amazing thing! :)Let us know what you need!

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  5. HOORAY! hope she gets to come home soon to play with her big brother!

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  6. She is adorable!!! And Gavin is looking so grown up now. I'm so happy she's doing well. What an amazing little girl! I can't wait to see her.

    Kristin

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